In this toolkit you’ll find videos and workbooks on:

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• What families want researchers to know- with Hannah Pringle (mum of Ruby) and Angie Sari-Daher and Tamer Daher (parents of Eve)

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• Compassionate communication- with Rachel Callander (mum of Evie  & communication specialist) 

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• Models of meaningful consumer engagement- with Kris Pierce (lived experience & strategic lead for consumer & community engagement at Rare Diseases UNSW)

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Watch this space for upcoming resources to support planning and evaluating lived experience engagement in paediatric palliative care research.